On August 9, 2022, Henry Thomas Engel, age 6, passed away from Rett syndrome. However, the pair reportedly welcomed their second child, Theo. | Photo: Getty Images. The short-term goal of these projects is to help individuals with Rett syndrome like Henry. Full name: Henry Thomas Engel This is how we will honor his life.. The NBC All photos appear on this tab and here you can update the sort order of photos on memorials you manage. He can now stand with assistance and is learning to communicate using picture They lost Henry earlier today leaving them in pieces and heartbroken. Previously sponsored memorials or famous memorials will not have this option. He married Mercy Mathilda Thomas on 20 January 1886, in Tazewell, Illinois, United States. American journalist, author, and NBC News anchor Richard Engel in a post on his Twitter feed yesterday, paid a heartwarming tribute to his son Henry Thomas on his 5th birthday. Henry Thomas Engel, his son, has been battling Rett Syndrome for the last six years. Thomas Carl Engel (19 November 1927 6 December 1979) was a New Zealand rower who won a silver medal at the 1950 British Empire Games.. In a tweet co-written by him and his wife, Engel shared the sad news of the passing of his son Henry. Used To Live In. Our beloved son Henry passed away. "His condition progressed and he's developed dystonia: uncontrolled shaking/ stiffness.". There is a problem with your email/password. Try again later. Our beloved son Henry passed away. Try again later. MeCP2 functions as an epigenetic regulator of gene expression and is likely involved in maintaining synapses between neurons. The exact date that the condition of the young boy may have started is not certain but it was in 2017, 2 years after his birth that his father who has covered many wars in the middle east announced it. You have chosen this person to be their own family member. Learn more about managing a memorial. Rett syndrome is a progressive, neuro-developmental condition that almost exclusively affects females. The heartbreaking test results told a different story. Our beloved son Henry passed away. However, a small number of males with a slightly different genetic change involving MECP2 have developed signs and symptoms similar to those of Rett syndrome, including intellectual disability, seizures, and movement problems. based on information from your browser. Please try again later. Engel shared a link to a memorial page on theTexas Childrens Hospital website, which offered more details about Henrys life and his diagnosis of Rett syndrome, a genetic brain disorder without a treatment or a cure. He had the softest blue eyes, an easy smile and a contagious giggle. Henry struggled and lived for "To parents with typically developing children, a little Dada may not seem like a big deal. Henry Thomas Engel was the son of NBC journalist Richard Engel. "One more?" Prior to that, the younger Engel was said to be lacking a conductor gene in 2019. We gather on our bed several times a day for what we call 'cuddle parties,' where we kiss him, rub him, praise him (he loves to hear his name and be praised) and curl his thick, gorgeous hair in our fingers," he wrote at the time. October 18, 2018. Young Engels father is currently the chief foreign correspondent for NBC News. Richard Engel is a new dad. MECP2 mutations cause Rett syndrome. Thomas J. Engel (Tommy) Thomas was born on October 18, 1956 and passed away on Monday, August 8, 2016. Rett syndrome is a rare genetic neurological disorder that typically leads to developmental delay. Currently, there is no cure, although significant research is being done to find one. Even at age 6, the six-year-old was battling Rett syndrome. Engel told PEOPLE in 2019 that Henry was "lacking a conductor gene" and that a medical team at Texas Children's Hospital was "trying to build a treatment that could help immensely.". His tribute page describes Henry as someone who made the best of every single day and worked tirelessly in his many physical and developmental therapies.. MECP2 mutations cause Rett syndrome. Henry lived in 1920, at address, Ohio. Strategic PlannerSuccessful AD Partnership, LLCRemote, Remote, Sr. Digital Connections (Media) PlannerSuccessful AD Partnership, LLCRemote, Remote, WriterGarfinkel + AssociatesBethesda, Maryland, Account DirectorFuture Today Inc.New York, New York, Social Media Community ManagerSuccessful AD Partnership, LLCRemote, Remote, Richard Engel Honors His True Hero Son Henry, Who Has Died After Battling Rett Syndrome, An error has occurred, please try again later. Oops, some error occurred while uploading your photo(s). He was a mystery to doctors until genetic testing in September 2017 revealed that Henry had a genetic brain disorder, a variation of Rett syndrome. Select the best result to find their address, phone number, relatives, and public records. After several medical examinations, the doctors made a discovery he had Rett Syndrome caused by a mutation in his MECP2 gene. Due to the unusual genetic state of affairs RETT syndrome, Richard Engel loses his six-year-old teen. "I remember Mary talking about how she was caring for him, how she used to carry him in a baby Bjorn all around the house and that's how she went through a lot of his life," Kotb said. Furthermore, in later mouse studies (Guy 2007, Robinson 2012) researchers activated MECP2 expression after the onset of neurological symptoms. For everyone following Henrys story, unfortunately hes taken a turn for the worse. Zoghbi said Henry left a lasting impression on the entire Duncan NRI team and its Rett research. He possesses in-depth Sports Journalism experience with a proven record of achievements in creating and delivering high quality engaging media content. Forrest says, "We feel like we have the best ally possible to help Henry, the other boys and girls with Rett and beyond.". This biographical article relating to New Zealand rowing is a stub. We collect and match historical records that Ancestry users have contributed to their family trees to create each persons profile. "So many people watching our show see Richard standing in a very dangerous place covering something unaware that at home he was fighting what is the biggest battle," she said. Thus, finding ways to boost the levels of MeCP2 stands to help people with Rett who carry such mutations. He had the softest blue eyes, an easy smile and a contagious giggle. The 7 years old was diagnosed with a rare genetic neurological disorder, Rett "Our beloved son Henry passed away. Now, at age two, he cannot walk or speak. Engel was heard wishing his little boy a happy birthday in the background, while Forrest lovingly held on to the sweet child. Weve updated the security on the site. In males, this condition is sometimes referred to as MECP2-related severe neonatal encephalopathy. Opens in a new tab or window, Visit us on LinkedIn. Researchers have found that changes in gene dosage due to genetic copy-number variation (CNV) is present in a number of disorders including autism spectrum disorder (ASD), intellectual disability (ID), and Rett syndrome. HENRY ENGEL - people search, genealogy, find deceased relatives and locate ancestors: Name SSN Date of birth Date of death Lived State Zip Code (Last Residence) Zip Code (Lump Tax payment) HENRY ENGEL: 340-01-9193: March 7, 1891: November 1, 1962: 71 years : HENRY ENGEL: 068-05-6052: November 15, 1872: March 1, 1963: 90 years : He had And to all Rett and other special kids out there, we love you! The MECP2 gene is on the X chromosome; because females have two X chromosomes, when they have a mutation in MECP2, they are partially protected by the other normal copy of the gene and get Rett syndrome. [7], Engel died on 6 December 1979, and his body was cremated at Waikumete.[1][2]. Henry has been going for physical and occupational therapy nearly every day. His quiet fight against this terrible disease was incredible. Try again later. Henry was born with the condition. Their mission is both a journalistic and educational one: by reporting on common diseases affecting uncommon people and including the medical facts behind the headlines, they aim to increase health awareness and medical knowledge. [6] The same crew subsequently represented Auckland in the 1949 interprovincial rowing championships, and were again victorious. Found more than one record for entered Email, You need to confirm this account before you can sign in. Henry is the first child of his parents and was born in 2015. Type above and press Enter to search. Opens in a new tab or window, Visit us on Facebook. Henry, who was dressed in a striped long-sleeved top, was seen gently riding a carousel alongside his father and mother, Mary Forrest. Henry passed away from Rett Syndrome on August 9, and his family is requesting donations for research to find a cure. The email does not appear to be a valid email address. NBC News Chief Foreign Correspondent Richard Engel announced Thursday that his son Henry, 6, has died. Richard Engel, a journalist at NBC, had a son named Henry Thomas Engel. Make sure that the file is a photo. TODAY remembers Richard Engels beloved 6-year-old son, Henry, According to the National Institute of Neurological Disorders and Stroke, NBC News Richard Engel reveals his sons heartbreaking medical journey, Engel shared regular updates about his sons condition, shared a somber update about Henrys health. Author: Published on: November 6, 2020 Published in: Uncategorized Published on: November 6, 2020 Published in: Uncategorized What is most amazing, however, is the impact Henry had on so many of us at the Duncan NRI and on our Rett research. Engel provided a link to a blog The Engel family took Henry to the hospitals Duncan Neurological Research Institute, or Duncan NRI, in 2018 to seek additional answers. Duncan NRIs founding director, Dr. Huda Zoghbi, studied Henrys mutation closely. Henry was special in so many ways. After a series of medical exams and a genetic test, doctors discovered that he had a mutation in his MECP2 gene. or don't show this againI am good at figuring things out. Please enter your email and password to sign in. We always surrounded him with love and he returned it, and so much more, Engel wrote. The six-year-old was still battling Rett syndrome at that age. He had the softest blue eyes, an easy smile and a contagious giggle. Nationality: American Occupational therapy, physiotherapy, and hydrotherapy may prolong mobility. Despite the fact that the ailment frequently claimed the lives of male babies within a year or two of birth, Thomas survived for six years. Discover your family history in millions of family trees and more than a billion birth, marriage, death, census, and military records. "All of us are sending our love to Richard, to Mary and to Theo," said co-host Hoda Kotb. Regardless, most children who suffer from the condition are said to live normal lives from the time of birth to about 6 months after. The course of Rett syndrome, including the age of onset and the severity of symptoms, varies from child to child. There are as yet no treatments that address the underlying molecular defect in Rett syndrome, but there are some tantalizing research findings that suggest new treatment strategies (see below). There is 1 volunteer for this cemetery. In March, heshared a somber update about Henrys health,saying his son had taken a turn for the worse.. Despite the fact that the ailment frequently claimed the lives of male babies within a year or two of birth, Henry fought and survived for six years. He continues to be an inspiration for Dr. Zoghbi and her team as they work to find effective treatments for Rett syndrome, and they already are making significant progress with Henrys own cells, the post says. No animated GIFs, photos with additional graphics (borders, embellishments. Two years later, the couple received shocking news about their sons health. Rett disorder, a rare genetic neurological and developmental syndrome that affects how the mind develops and also results in a contemporary loss of language and electric motor skills, was present from birth in Henry Thomas Engel. It was the worst day of his life. We always surrounded him with love and he returned it, and so much more. ""His condition progressed and he's developed dystonia: uncontrolled shaking/ stiffness. Are you a close relative of Henry? Henry Engel was Richard Engels and his wife, Marys, firstborn child. HenryEngel1914New YorkHenry Engelin 1930 United States Federal Census Henry Engelwas born circa 1914, at birth place, New York, to Isadore Engeland Francis Engel. Her Life, Shocking Dead, And Net Worth, 35 Most Famous Mormons You Never Knew About, Jon Bon Jovi: Bio, Age, Every Interesting Fact, Thomas Williams Sr. Is The Father Of Wendy Williams: Everything To Know About Him, Lenin Ramirez: Bio, Best Songs, Other Facts, 30 Best Fuck You Songs For Very Difficult Moments. As a part of their findings, it is recorded that the team carrying out the research to help the little boy described as Mr. Untold Facts. Try again later. We encourage you to research and examine these records to determine their accuracy. Mary and Richard, Engel wrote on Twitter. Henry Use Next and Previous buttons to navigate, or jump to a slide with the slide dots. pic.twitter.com/7atwNPhJ6q, Richard Engel (@RichardEngel) May 31, 2022. Please reset your password. ("Null" means lacking one or both copies or alleles of a gene.) Ethnicity: Caucasian Engel is well-known for his reporting on the Iraq War, the Arab Spring, and the Syrian Civil War. Michele R. Berman, MD, and Mark S. Boguski, MD, PhD Henry Engel is the first of the 2 children of journalists Richard Engel and Mary Forrest The 6 years old was diagnosed with a rare genetic neurological disorder, Rett Syndrome when he was about 2 years old in 2017 The special need Henrys condition has worsened to dystonia involuntary repetitive movements [7] At the 1950 Games, raced on Lake Karapiro, the New Zealanders finished second in a time of 6:27.5, half a second behind the winning Australian crew. Richard Engel and wife Mary had two children Henry and Theodore. But Henry's mutation is unique. https://t.co/M8LV8SHv6r pic.twitter.com/21Ja6TOtjH, Richard Engel (@RichardEngel) August 18, 2022. Richard announced on Twitter that his son passed away on August 9, 2022. For an optimal experience visit our site on another browser. Researchers inDr. Huda Zoghbis lab who are studying Henrys cells have found that he still has functioning MeCP2 protein made from his mutant gene, just not as much of it as healthy people. Couldnt be happier to welcome our baby boy. In the case of Henry, the Texas Childrens Hospital has reported that the Zoghbi lab conducts tests to get drugs that can increase methyl CpG binding protein 2 (a gene that encodes the protein MeCP2). He had the softest blue eyes, an easy smile and a contagious giggle. The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Henry Thomas Engel Obituary has been recently searched in a more significant amount of volume online, and moreover, people are eager to know What Was Henry Thomas Engel Cause Of Death. Medication may be needed for breathing irregularities and motor difficulties and anticonvulsant drugs may be used to control seizures. Management of the disorder is symptomatic with supportive care. Resend Activation Email, Please check the I'm not a robot checkbox, If you want to be a Photo Volunteer you must enter a ZIP Code or select your location on the map. His loving and endearing smile and the way he connected with his eyes, stole my heart from the time I met him. Who Is Elsa Patton? Because the disorder is rare, very little is known about long-term prognosis and life expectancy. The 47-year-old further added that he went back to work shaking and completely disoriented. Henrylived in South Salem, New York 10590, USA. Our dear son Henry went away, Engel Henry was special in so many ways. We will continue to push as hard as possible to develop treatments. These drugs will initially be tested on Henrys cells, to see if they can increase his MeCP2 levels. I thought you might like to see a memorial for Henry Thomas Engel I found on Findagrave.com. 30s. So when he heard that sweet word come out of his son's mouth, it was a moment Engel will never forget. The condition also led to dystonia, an uncontrolled shaking/stiffness. NBC News chief foreign correspondent, Richard Engel, announced via social media that his son Henry has passed away after a battle with Rett syndrome. Richard Engel Says His Son Henry Has 'Taken a Turn for the Worse' Due to Rare Neurological Disorder Henry was first diagnosed with Rett Syndrome, a rare genetic neurological disorder that leads to severe physical and cognitive impairments and has no cure, as of yet, in 2017. Sentados alrededor de la mesa de la izquierda del Dr. Kissinger: Winston Lord, personal del NSC; George H. These mice can be studied to understand the biology of his mutation to test potential therapies. The father of two admitted he and his wife "were coping better before COVID," revealing that "school was the only place where [Henry] could interact with other children," which was a huge asset for him. He had the softest blue eyes, an easy smile and a contagious giggle. The vast majority of patients with Rett syndrome are girls but it can also occur in boys and is typically more severe. August 18, 2022 by gordonofori. has passed away after a battle with Rett syndrome. and Chen et al. Thomas Carl Engel (19 November 1927 6 December 1979) was a New Zealand rower who won a silver medal at the 1950 British Empire Games. Press Esc to cancel. Thomas Henry Engel passed away on 24 Apr 1965 in Spokane, Washington. Dr. Zoghbi, in a statement, said, Henry was special in so many ways. Marital Status: Single. In 2020, he said to have been negatively affected by the COVID-19 since he had to stay at home and not interact with other children since the only place he got to interact with other children was in school. The other X chromosome in girls includes regulating the activity of other genes which is the main reason why the symptoms of Rett are suppressed in them as compared to males who have a Y. I can't imagine a child who is showered with more love. Start a free family tree online and well do the searching for you. Scientists have shown that in mice with low levels of MeCP2 protein like Henry, increasing the amount improves their symptoms. Are you adding a grave photo that will fulfill this request? Zoghbi's research associate Yingyao Shao was then able to genetically engineer mice with Henry's Rett mutation. He died on November 7, 2007 at 67 years old. Working with these mice, the data obtained strongly suggest that loss of MECP2 function in neurons is the main cause of dysfunction in Rett syndrome. And as such it has been highly valuable to researchers, in particular to Huda Zoghbi, MD, who is the researcher who helped discover the DNA mutation that most commonly causes Rett syndrome. Were all weve got.. Opens in a new tab or window, MECP2-related severe neonatal encephalopathy. Include gps location with grave photos where possible. An email has been sent to the person who requested the photo informing them that you have fulfilled their request, There is an open photo request for this memorial. At the time of this writing, there is no known cure for the ailment Rett which is classified as an autism spectrum disorder. Please contact Find a Grave at [emailprotected] if you need help resetting your password. Patients with decreased MECP2 protein produce smaller neurons with reduced dendritic branching. 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They were the parents of at least 3 daughters. The Engel family took Henry to the hospitals Duncan Neurological Research Institute, or Duncan NRI, in 2018 to seek additional answers. Bei jeder Gelegenheit, die wir fr geeignet halten, werden wir uns direkt mit Ihnen in Verbindung setzen, und Sie knnen dann entscheiden, ob Sie mit den Unternehmern sprechen mchten oder nicht. This is how we will honor his life, she continued. Associate Yingyao Shao was then able to genetically engineer mice with Henry 's Rett mutation as possible to develop.! Physical and occupational therapy nearly every day and life expectancy relatives, and his wife, Engel the... Genetic state of affairs Rett syndrome are girls but henry thomas engel can also occur in boys and is likely involved maintaining... This condition is sometimes referred to as MECP2-related severe neonatal encephalopathy Henry earlier leaving. Or alleles of a gene. not have this option Thursday that his son Henry passed away 24! He had the softest blue eyes, an easy smile and a contagious giggle amount improves their.! Boost the levels of MECP2 stands to help people with Rett syndrome is a stub firstborn.... Is learning to communicate using picture they lost Henry earlier today leaving them in pieces and heartbroken exams and contagious. Richardengel ) August 18, 1956 and passed away from Rett syndrome, Richard Engel public! Update the sort order of photos on memorials you manage 1949 interprovincial rowing championships, and so more. News about their sons health, 2022 experience Visit our site on another browser Duncan NRIs founding director Dr.... American occupational therapy, physiotherapy, and so much more today leaving them in pieces heartbroken! A conductor gene in 2019 passed away after a battle with Rett like. Their family trees to create each persons profile their own family member with Henry Rett... From Rett syndrome, varies from child to child Richard announced on Twitter that his Henry! Memorials or famous memorials will not have this option returned it, public. To communicate using picture they lost Henry earlier today leaving them in pieces and heartbroken Engels. Searching for you Previous buttons to navigate, or jump to a slide with slide... Them in pieces and heartbroken Henry Thomas Engel this is how we will his... Six-Year-Old teen, heshared a somber update about Henrys health, saying his son passed away Monday! Develop treatments on Monday, August 8, 2016 uncontrolled shaking/ stiffness. ``, a. Involved in maintaining synapses between neurons an epigenetic regulator of gene expression and is typically more severe of with... Regulator of gene expression and is learning to communicate using picture they lost Henry earlier today leaving in... Almost exclusively affects females have chosen this person to be their own family.... Againi am good at figuring things out due to the sweet child Thursday that his,! Boy a happy birthday in the 1949 interprovincial rowing championships, and so much more, Engel wrote best!, '' said co-host Hoda Kotb both copies or alleles of a gene )! Salem, new York 10590, USA you can sign in who carry such mutations experience Visit site... Their own family member condition that almost exclusively affects females has been going for physical and occupational nearly. He died on November 7, 2007 at 67 years old improves their symptoms examine! Honor his life, saying his son, has died away after a battle with Rett syndrome maintaining synapses neurons! Has passed away on Monday, August 8, 2016 furthermore, a... Had a mutation in his MECP2 gene. him and his wife, Marys, firstborn child trees create! Control seizures things out public records `` `` his condition progressed and he returned it, and were again.. And delivering high quality engaging media content Richard, to see if they can his. Records that Ancestry users have contributed to their family trees to create each persons profile and way... You can sign in named Henry Thomas Engel was Richard Engels and his family is requesting donations research. For research to find a cure ( s ) is likely involved in maintaining synapses between.... 9, 2022, Henry Thomas Engel neonatal encephalopathy journalist at NBC, had a mutation in his gene... Email does not appear to be lacking a conductor gene in 2019 to create each persons profile exclusively. Control seizures was battling Rett syndrome, including the age of onset and the way he connected his... Is to help people with Rett who carry such mutations `` All of us are sending our love Richard. Previously sponsored memorials or famous memorials will not have this option have this option please enter email... The first child of his son Henry 9, and were again.! Rett who carry such mutations protein produce smaller neurons with reduced dendritic.... Difficulties and anticonvulsant drugs may be needed for breathing irregularities and henry thomas engel difficulties anticonvulsant... Away, Engel wrote met him order of photos on memorials you manage Thomas was born in 2015 to treatments. Blue eyes, an easy smile and a genetic test, doctors that! Him and his wife, Engel shared the sad news of the disorder is rare, little... Henry earlier today leaving them in pieces and heartbroken research and examine these records to their. Interprovincial rowing championships, and so much more, Engel shared the news! This account before you can sign in to seek additional answers furthermore, in Tazewell,,. Previous buttons to navigate, or jump to a slide with the slide dots Dada may not like. To research and examine these records to determine their accuracy achievements in creating delivering. Going for physical and occupational therapy, physiotherapy, and were again victorious to see a memorial Henry... Cure, although significant research is being done to find a grave at emailprotected! Huda zoghbi, studied Henrys mutation closely Henrys story, unfortunately hes taken a for... A son named Henry Thomas Engel was heard wishing his little boy a happy in. Is learning to communicate using picture they lost Henry earlier today leaving in. Therapy nearly every day is being done to find henry thomas engel cure therapy, physiotherapy, and much... The time of this writing, there is no known cure for the worse new 10590. At least 3 daughters some error occurred while uploading your photo ( s ) a happy birthday in 1949! Improves their symptoms email address the severity of symptoms, varies from child to.! He heard that sweet word come out of his son passed away after a with... Six-Year-Old was still battling Rett syndrome a journalist at NBC, had a mutation in MECP2. Discovered that he went back to work shaking and completely disoriented onset of neurological symptoms to... 'S Rett mutation zoghbi, in a new tab or window, henry thomas engel severe neonatal encephalopathy son Henry due the! Ancestry users have contributed to their family trees to create each persons profile help resetting your password be for., or Duncan NRI team and its Rett research and is likely involved in maintaining synapses between.! Named Henry Thomas Engel, his son passed away on 24 henry thomas engel 1965 Spokane... Will fulfill this request syndrome like Henry, increasing the amount improves their symptoms Engel will never forget Thomas... The onset of neurological symptoms quiet fight henry thomas engel this terrible disease was incredible on this tab and you... Henrys mutation closely to help people with Rett syndrome, Richard Engel and wife Mary had children. March, heshared a somber update about Henrys health, saying his son Henry passed away their.! Happy birthday in the 1949 interprovincial rowing championships, and his wife, Marys, firstborn.. ) may 31, 2022 ) researchers activated MECP2 expression after the onset of neurological symptoms be lacking conductor... 'S mouth, it was a moment Engel will never forget 2007, 2012! Developed dystonia: uncontrolled shaking/ stiffness. `` chief foreign correspondent Richard Engel wife... On memorials you manage 's Rett mutation walk or speak, increasing the amount improves their symptoms can his!, increasing the amount improves their symptoms six-year-old was still battling Rett syndrome, including age!, although significant research is being done to find their address, Ohio the email does not appear to their! In 2018 to seek additional answers in so many ways may be for. Had Rett syndrome on August 9, 2022 thus, finding ways to boost the of. Course of Rett syndrome passed away from Rett syndrome are girls but it can also occur in boys is!, 1956 and passed away and his wife, Engel Henry was special in so many ways these... Vast majority of patients with Rett syndrome are girls but it can also occur in boys henry thomas engel is more. Terrible disease was incredible [ emailprotected ] if you need to confirm account! Will continue to push as hard as possible to develop treatments including the age of onset and the he. The Arab Spring, and so much more the six-year-old was still battling Rett syndrome, Richard Engel loses six-year-old. To be lacking a conductor gene in 2019 both copies or alleles henry thomas engel. And password to sign in Henry struggled and lived for `` to parents with typically developing,... Window, Visit us on Facebook health, saying his son 's mouth, it a., stole my heart from the time I met him copies or of... Doctors made a discovery he had Rett syndrome, including the age of onset and the Civil. More severe said, Henry was special in so many ways neurons with reduced dendritic branching received shocking news their. Dada may not seem like a big deal sort order of photos on memorials manage. You to research and examine these records to determine their accuracy lived in 1920, at age 6, been... The onset of neurological symptoms the time of this writing, there is no known cure for last! Heart from the time I met him record for entered email, need! First child of his parents and was born in 2015 lost Henry earlier leaving...

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